catching up in june

On March 10th 2016 I was informed a sebaceous cyst removed from the top of my right thigh a few weeks previously was cancer.

dfsp unicorn pic

  • ‘dfsp’ stands for Dermatofibrosarcoma Protuberans
  • yellow for sarcoma, a form of cancer, in this case soft tissue, not skin cancer although it is often referred to as that
  • purple for surviving cancer, usually if been clear of it for some time and considered cured
  • unicorn because this type of sarcoma is rarer than a unicorn – sarcoma is a form of cancer; cancer of soft tissue, connective tissue, bone and various other sites – sarcomas comprise 1% of all cancers – dfsp comprise 1% of these it is thought
  • I had an operation at the cancer hospital Christies in Manchester U.K. on June 10th. One week in I drag my right leg like Quasi Modo and will have permanent numbness and hope the jangling nerves settle, but, I am deemed cancer free and it is unlikely this locally aggressive sarcoma will grow back.

That’s my story – if you would like to know more you are welcome to contact me. There is little known about dfsp, as I found out, so if you become ‘one in a million’ like me or know someone who gets this diagnosis you will need to wise up fast so you can inform medical people. Yes, you have to tell them most of the time.


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